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'''Christopher Gillberg''' (born 19&nbsp;April 1950) is a professor of Child and Adolescent Psychiatry at ] in ], ], and at the medical college of ]. He has also been a visiting professor at the universities of ], ], ], and ].<ref name=APS>Munk-Jørgensen, P. (August 2003), "Biographies", , 108: 160, doi:10.1034/j.1600-0447.2003.00154.x. ISSN 0001-690X</ref> '''Christopher Gillberg,''' (b. 1950) is a professor of Child and Adolescent Psychiatry at ] in ], ], and at the medical college of ] in ] in south ].


Gillberg is known for his research of ] in children, ], ], and ]. He is the founding editor of the journal ''European Child & Adolescent Psychiatry''. He is author and editor of several scientific and educational books, and he has authored or co-authored more than 300 scientific papers listed in ]. He is also the recipient of several scientific awards.{{citation needed}} Gillberg is known for his research of ] in children, ] (Deficits in Attention, Motor control and Perception), ] and ]. He is the founding editor of the journal ''European Child & Adolescent Psychiatry'', and is the author and editor of several scientific and educational books. He is the recipient of several scientific awards, including the ''Philips Nordic Prize 2004 for neurological research'',<ref> Accessed 19 August 2006. "Last year's winner: Christopher Gillberg."</ref> and he has more than 300 scientific papers listed in ].

There have been some controversies related to ]. Gillberg was alleged to have fabricated much of the data in the study. In 2004, a court ordered Gillberg to make the data available for independent scrutiny. Gillberg's wife and two other co-workers then deliberately destroyed most of the data, arguing that to obey the court order would violate promises of confidentiality that had been made to the study's subjects. Investigation of the allegations was thereby made infeasible.



==Autism in children==
Gillberg is widely recognized as a world-leading expert on autism in children. His research in this area includes study on virtually all aspects.


Gillberg is involved in a legal controversy over confidentiality of destroyed patient records.


==Gillberg's criteria for Asperger's syndrome== ==Gillberg's criteria for Asperger's syndrome==
Gillberg's criteria are as follows (all six criteria must be met for confirmation of diagnosis).<ref >Gillberg I.C., Gillberg C., (July 1989) "Asperger syndrome-some epidemiological considerations: A research note", ''J Child Psychol Psychiatry'' 30(4):631-8. PMID 2670981</ref><ref>Attwood, Tony. ''Asperger's Syndrome: A Guide for Parents and Professionals''. Jessica Kingsley, London, 1997. ISBN 1853025771, pp. 195-196.</ref> Gillberg's criteria are as follows (all six criteria must be met for confirmation of diagnosis): <ref name=Gill>Gillberg IC, Gillberg C. "Asperger syndrome-some epidemiological considerations: A research note." ''J Child Psychol Psychiatry.'' 1989 Jul;30(4):631-8. PMID 2670981</ref><ref>Attwood, Tony. "Asperger's Syndrome: A Guide for Parents and Professionals". Jessica Kingsley, London, 1997. ISBN 1853025771, pp. 195-196.</ref>


#Severe impairment in reciprocal social interaction (at least two of the following) #Severe impairment in reciprocal social interaction (at least two of the following)
Line 42: Line 36:
#Motor clumsiness: poor performance on neurodevelopmental examination #Motor clumsiness: poor performance on neurodevelopmental examination


(These criteria are different than those given in the]-IV-TR.)
These criteria are are not internationally-accepted criteria (such as those given in ]-IV <ref>American Psychiatric Association (2000),"", ''Diagnostic and Statistical Manual of Mental Disorder'', Fourth edition (Washington).</ref>) used by most other researchers and clinicians. Gillberg has been critcized for defining his own "unique" criteria, especially because they make it difficult to compare different studies of Asperger's syndrome.<ref>Klin A., Pauls D., Schultz R., Volkmar F. (April 2005), "", ''Journal of Autism and Developmental Disorders'' 35: 221-234. doi:10.1007/s10803-004-2001-y.</ref>


==DAMP, MBD, and ADHD==
Gillberg played a leading role in developing the concept ] ''(Deficits in Attention, Motor control and Perception)'' in the 1980s. The concept was partly based on previous attempts to define diagnostic criteria for ] ''(Minimal Brain Dysfunction)''. Around 1990, DAMP was becoming an accepted diagnostic concept in the ]. DAMP is equivalent to ] in combination with ] as defined by ]. (In the ] ], it is equivalent to ] combined with a ]). About half of the children with ADHD also have DCD. <ref name="AHDH_DCD"> {{ cite journal
| last = Martin
| first = Neilson C.
| authorlink =
| coauthors = Piek Jan P, Hay, David
| title = DCD and ADHD: A genetic study of their shared aetiology
| journal = Human Movement Science 25
| volume = 25
| issue = 1
| pages = 110–124
| publisher = The Association for Child Psychology and Psychiatry
| date = Feb, 2006
| url =
| doi = 10.1016/j.humov.2005.10.006
| id = ISSN: 0167-9457
| accessdate = }}
</ref>


==Criticism and controversy==
==The Gothenburg Study: controversies==
In 1997 Gillberg co-authored an ] in Sweden's largest morning paper with the Chief School Physician of ].{{fact}} They argued that about 10% of Swedish children had neurologically related problems that required special consideration in school. A ] named Leif Elinder criticised Gillberg and his research.{{fact}} Elinder was associated with the ] Eva Kärfve at ], who wrote a book, published in 2000, rejecting most of the research on ], and especially Gillberg's.{{fact}} Other psychiatrists and neuroscientists in Sweden defended the Gillberg group and argued that Kärfve had crossed the line from scientific criticism to personal attacks and vilification.{{fact}} A public controversy ensued with many articles in various Swedish trade journals and newspapers.{{fact}} The conflict escalated when Kärfve and Elinder wrote separate letters to ], accusing the Gillberg group of scientific misconduct.{{fact}} The accusations were investigated by the Ethics Council and dismissed as baseless in 2003.{{fact}} Elinder and Kärfve were not satisfied with this decision and demanded full access to the original research material for the main ] studies.{{fact}} Under a section of the Swedish ] that grants citizens access to government documents, Elinder and Kärfve were given full access to the documents by an administrative court.{{fact}} The university, the Gillberg group, and the participants of the study were stongly opposed to this decision, on the grounds that the material contained highly sensitive information and that the participants had been promised full confidentiality.{{fact}} A higher court decided that neither the participants, the researchers, nor their institution, had the right to appeal the decision.{{fact}} In the end, three of Gillberg's coworkers destroyed the 12&ndash;27 years old research material, claiming that the privacy of the participating patients would have been violated had it been handed to Kärfve and Elinder. They were convicted of destroying government property.{{fact}} The final appeal was rejected in February 2006.{{fact}} <ref name="White1">White, C. ''British Medical Journal'' 2005 Jul 23;331(7510):180. PMID 16037439</ref>
{{main|Gillberg's Gothenburg study}}


==Notes==
] is a ]-related study of 141 Swedish people, beginning when they were about six years old and lasting until adulthood. Gillberg stated that the study showed roughly ten percent of all children have DAMP or other related psychiatric problems. The results regarding DAMP have been criticised by the ] Eva Kärfve, at the ], and the Swedish ] Leif Elinder. Kärfve and Elinder alleged that Gillberg had forged much of the study data. Gothenburg University decided not to request an investigation of the allegations. Kärfve and Elinder (as private persons) then demanded access to the research material behind the Gothenburg study about DAMP, but the university denied them this. They then took the matter to court, where it was decided that the two critics would be allowed to access some of the research material, although the material on patients falls under privacy restrictions.
<div class="references-small" style="-moz-column-count:2; column-count:2;">
<references /></div>


== References ==
In May 2004, Gillberg's wife and two other co-workers destroyed the 12&ndash;27 years old research material, claiming that the privacy of the participating patients would have been violated had it been handed to Kärfve and Elinder.<ref>White, Caroline (10 July 2004), ", '']'', 329: 72.</ref> In June 2005, Gillberg and the rector of Gothenburg University were convicted for not handing the material over to Kärfve and Elinder.
*{{ cite journal
| last = Ehlers
| first = Stefan
| authorlink =
| coauthors = Gillberg, Christopher
| title = The Epidemiology of Asperger Syndrome - A Total Population Study
| journal = Journal of Child Psychology and Psychiatry and Allied Disciplines
| volume = 34
| issue = 8
| pages = 1327-1350
| publisher = The Association for Child Psychology and Psychiatry
| date = Nov, 1993
| url = http://www.asperger.org/MAAP_Sub_Find_It_-_Publications_Ehlers_and_Gillberg_Article.htm
| doi =
| id = ISSN: 0021-9630
| accessdate = }}


*{{ cite journal
| last = Happe
| first = Francesca
| authorlink =
| coauthors = Ehlers Stefan, Fletcher Paul & al.
| title = 'Theory of mind' in the brain. Evidence from a PET scan study of Asperger syndrome
| journal = Neuroreport
| volume = 8
| issue = 1
| pages = 197-201
| publisher = Rapid Science Publishers
| date = Dec 20, 1996
| url =
| doi =
| id = ISSN:0959-4965
| accessdate = }}


*{{ cite journal
== Gillberg's publications (selected) ==
| last = Jamain
| first = Stéphane
| authorlink =
| coauthors = Quach1 Hélène, Betancur Catalina et al.
| title = Mutations of the X-linked genes encoding neuroligins NLGN3 and NLGN4 are associated with autism
| journal = Nature Genetics
| volume = 34
| issue = 1
| pages = 27-29
| publisher = Nature Publishing Group
| date = 31 March, 2003
| url =
| doi = 10.1038/ng1136
| id = ISSN: 1061-4036
| accessdate = }}


*{{ cite journal
===Books===
| last = Philippe
| first = Anne
| authorlink =
| coauthors = Martinez Maria, Guilloud-Bataille Michel et al.
| title = Genome-wide scan for autism susceptibility genes
| journal = Human Molecular Genetics
| volume = 8
| issue = 5
| pages = 805-812
| publisher = Oxford University Press
| date = May, 1999
| url = http://hmg.oxfordjournals.org/cgi/content/full/8/5/805
| doi = 10.1093/hmg/8.5.805
| id = ISSN: 1460-2083
| accessdate = }}

*{{ cite journal
| last = Ståhlberg
| first = Ola
| authorlink =
| coauthors = Söderström Henrik, Råstam, Maria et al.
| title = Bipolar disorder, schizophrenia, and other psychotic disorders in adults with childhood onset AD/HD and/or autism spectrum disorders
| journal = Journal of Neural Transmission
| volume = 111
| issue = 7
| pages = 891 - 902
| publisher = Springer Wien
| date = July 2004
| url =
| doi = 10.1007/s00702-004-0115-1
| id = ISSN: 0300-9564
| accessdate = }}

*{{ cite journal
| last = Steffenburg
| first = Suzanne
| authorlink =
| coauthors = Gillberg Christopher, Hellgren Lars & al.
| title = A Twin Study of Autism in Denmark, Finland, Iceland, Norway and Sweden
| journal = Journal of Child Psychology and Psychiatry and Allied Disciplines
| volume =30
| issue = 3
| pages = 405-416
| publisher = The Association for Child Psychology and Psychiatry
| date = May, 1989
| url =
| doi =
| id = ISSN: 0021-9630
| accessdate = }}

== Further reading ==
* {{cite book
| author=Coleman, Mary; Gillberg, Christopher
| year = 1985
| title= The biology of the autistic syndromes
| publisher = Praeger
| location = ]
| id = ISBN 0030008344
}}


* {{cite book * {{cite book
Line 67: Line 187:


* {{cite book * {{cite book
| author= Gillberg, Christopher; Coleman, Mary | author=Gillberg, Christopher (ed.)
| year = 2000
| title= The biology of the autistic syndromes (third edition)
| publisher = MacKeith Press
| id = ISBN 1898683220
}}

* {{cite book
| author=Gillberg, Christopher (editor)
| year = 1989 | year = 1989
| title= Diagnosis and treatment of autism | title= Diagnosis and treatment of autism
Line 93: Line 205:
* {{cite book * {{cite book
| author = Gillberg, Christopher; Peeters, Theo | author = Gillberg, Christopher; Peeters, Theo
| title=Autism: medical and educational aspects | title=Autism : medical and educational aspects
| year=1998 | year=1998
| publisher=Whurr | publisher=Whurr
Line 109: Line 221:


* {{cite book * {{cite book
| author = Gillberg, Christopher; Harrington, Richard; Steinhausen, Hans-Christoph | author = Gillberg, Christopher;Harrington, Richard; Steinhausen, Hans-Christoph
| title=A clinician's handbook of child and adolescent psychiatry | title=A clinician's handbook of child and adolescent psychiatry
| year=2006 | year=2006
| publisher=Cambridge University Press | publisher=Cambridge University Press
| location = ]
| id=ISBN 9780521819367 | id=ISBN 9780521819367
}} }}

Some of these books are also available in other languages.<ref name=APS/>

===Journal articles===
{{ cite journal
| last = Ehlers
| first = Stefan
| authorlink =
| coauthors = Gillberg, Christopher
| title = The epidemiology of Asperger Syndrome: a total population study
| journal = Journal of Child Psychology and Psychiatry and Allied Disciplines
| volume = 34
| issue =
| pages = 1327-1350
| publisher = The Association for Child Psychology and Psychiatry
| date = November 1993
| url = http://www.asperger.org/MAAP_Sub_Find_It_-_Publications_Ehlers_and_Gillberg_Article.htm
| doi =
| id = ISSN 0021-9630
| accessdate = }}

{{ cite journal
| last = Gillberg
| first = Christopher
| authorlink =
| title = The Emanuel Miller Memorial Lecture 1991&mdash;Autism and autistic-like conditions: subclasses among disorders of empathy
| journal = Journal of Child Psychology and Psychiatry and Allied Disciplines
| volume = 33
| issue =
| pages = 813-842
| date = 1993
| url = http://www.maapservices.org/MAAP_Sub_Find_It_-_Publications_Gillberg_Article.htm
| accessdate = }}

{{ cite journal
| last = Gillberg
| first = Christopher
| authorlink =
| title = Chromosomal disorders and autism
| journal = Journal of Autism and Developmental Disorders
| volume = 28
| issue =
| pages = 415-425
| date = 1998
| url = http://www.springerlink.com/content/q155p373413410m6/fulltext.pdf
| accessdate = }}

{{ cite journal
| last = Gillberg
| first = Christopher
| authorlink =
| title = Autism and Asperger syndrome in seven-year-old childrent
| journal = Journal of Autism and Developmental Disorders
| volume = 29
| issue =
| pages = 327-331
| date = 1999
| url = http://www.springerlink.com/content/q7842p370v730g2j/fulltext.pdf
| accessdate = }}

{{ cite journal
| last = Kadesjo
| first = Bjorn
| coauthors = Gillberg, Christopher, Hagberg, Bibbi
| authorlink =
| title = Deficits in attention, motor control, and perception: a brief review
| journal = Archives of Disease in Childhood
| volume = 88
| issue =
| pages = 904-910
| date = 2003
| url = http://adc.bmjjournals.com/cgi/content/full/88/10/904
| doi = 10.1136/adc.88.10.904
| accessdate = }}

{{ cite journal
| last = Landgren
| first = Magnus
| authorlink =
| coauthors = Kjellman, Bengt, Gillberg, Christopher
| title = Attention deficit disorder with developmental coordination disorders
| journal = Archives of Disease in Childhood
| volume = 79
| issue =
| pages = 207-212
| date = September 1998
| url = http://www.fetalneonatal.com/cgi/reprint/79/3/207
| accessdate = }}

{{ cite journal
| last = Philippe
| first = Anne
| authorlink =
| coauthors = Martinez Maria, Guilloud-Bataille Michel et al.
| title = Genome-wide scan for autism susceptibility genes
| journal = Human Molecular Genetics
| volume = 8
| issue = 5
| pages = 805-812
| publisher = Oxford University Press
| date = May 1999
| url = http://hmg.oxfordjournals.org/cgi/content/full/8/5/805
| doi = 10.1093/hmg/8.5.805
| id = ISSN 1460-2083
| accessdate = }}


==Notes==
<references/>


== External links == == External links ==
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}} }}


* - Information about the Philips Prize
* (journal)
* (A ] documentary featuring Gillberg) * (A ] documentary featuring Gillberg)
* (journal)
* in ''Looking Up'' (an autism newsletter) 3:12, 2005. * in ''Looking Up'' (an autism newsletter) 3:12, 2005.
* - "Rapid responses" submitted to ''British Medical Journal'', 2004
* (awarded to Gillberg)
* at Gothenburg University * ], 2001 (in Swedish)
* Official web page in Swedish, Aug 21, 2005. (''Riksförbundet Attention'' is a national Swedish association for people with neuropsychiatric disabilities.)

* Press release in Swedish. Undated, 2006. (''Riksföreningen Autism'' is the national Swedish association for people with autism and autism-like disorders.)


<!-- Categories: alphabetical --> <!-- Categories: alphabetical -->
Line 244: Line 250:
] ]
] ]






Revision as of 14:45, 19 August 2006

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Christopher Gillberg, (b. 1950) is a professor of Child and Adolescent Psychiatry at Gothenburg University in Gothenburg, Sweden, and at the medical college of St George's, University of London in Tooting in south London.

Gillberg is known for his research of autism in children, DAMP (Deficits in Attention, Motor control and Perception), Asperger syndrome and ADHD. He is the founding editor of the journal European Child & Adolescent Psychiatry, and is the author and editor of several scientific and educational books. He is the recipient of several scientific awards, including the Philips Nordic Prize 2004 for neurological research, and he has more than 300 scientific papers listed in Medline.

Gillberg is involved in a legal controversy over confidentiality of destroyed patient records.

Gillberg's criteria for Asperger's syndrome

Gillberg's criteria are as follows (all six criteria must be met for confirmation of diagnosis):

  1. Severe impairment in reciprocal social interaction (at least two of the following)
    1. inability to interact with peers
    2. lack of desire to interact with peers
    3. lack of appreciation of social cues
    4. socially and emotionally inappropriate behavior
  2. All-absorbing narrow interest (at least one of the following)
    1. exclusion of other activities
    2. repetitive adherence
    3. more rote than meaning
  3. Imposition of routines and interests (at least one of the following)
    1. on self, in aspects of life
    2. on others
  4. Speech and language problems (at least three of the following)
    1. delayed development
    2. superficially perfect expressive language
    3. formal, pedantic language
    4. odd prosody, peculiar voice characteristics
    5. impairment of comprehension including misinterpretations of literal/implied meanings
  5. Non-verbal communication problems (at least one of the following)
    1. limited use of gestures
    2. clumsy/gauche body language
    3. limited facial expression
    4. inappropriate expression
    5. peculiar, stiff gaze
  6. Motor clumsiness: poor performance on neurodevelopmental examination

(These criteria are different than those given in the DSM-IV-TR.)

DAMP, MBD, and ADHD

Gillberg played a leading role in developing the concept DAMP (Deficits in Attention, Motor control and Perception) in the 1980s. The concept was partly based on previous attempts to define diagnostic criteria for MBD (Minimal Brain Dysfunction). Around 1990, DAMP was becoming an accepted diagnostic concept in the Nordic countries. DAMP is equivalent to ADHD in combination with DCD as defined by DSM-IV. (In the WHO system, it is equivalent to hyperkinetic disorder combined with a developmental disorder of motor function). About half of the children with ADHD also have DCD.

Criticism and controversy

In 1997 Gillberg co-authored an op-ed in Sweden's largest morning paper with the Chief School Physician of Stockholm. They argued that about 10% of Swedish children had neurologically related problems that required special consideration in school. A pediatrician named Leif Elinder criticised Gillberg and his research. Elinder was associated with the sociologist Eva Kärfve at Lund University, who wrote a book, published in 2000, rejecting most of the research on DAMP, and especially Gillberg's. Other psychiatrists and neuroscientists in Sweden defended the Gillberg group and argued that Kärfve had crossed the line from scientific criticism to personal attacks and vilification. A public controversy ensued with many articles in various Swedish trade journals and newspapers. The conflict escalated when Kärfve and Elinder wrote separate letters to Gothenburg University, accusing the Gillberg group of scientific misconduct. The accusations were investigated by the Ethics Council and dismissed as baseless in 2003. Elinder and Kärfve were not satisfied with this decision and demanded full access to the original research material for the main DAMP studies. Under a section of the Swedish basic law that grants citizens access to government documents, Elinder and Kärfve were given full access to the documents by an administrative court. The university, the Gillberg group, and the participants of the study were stongly opposed to this decision, on the grounds that the material contained highly sensitive information and that the participants had been promised full confidentiality. A higher court decided that neither the participants, the researchers, nor their institution, had the right to appeal the decision. In the end, three of Gillberg's coworkers destroyed the 12–27 years old research material, claiming that the privacy of the participating patients would have been violated had it been handed to Kärfve and Elinder. They were convicted of destroying government property. The final appeal was rejected in February 2006.

Notes

  1. Philips: Philips Nordic Prize for research within Neurodevelopmental Disorders. Accessed 19 August 2006. "Last year's winner: Christopher Gillberg."
  2. Gillberg IC, Gillberg C. "Asperger syndrome-some epidemiological considerations: A research note." J Child Psychol Psychiatry. 1989 Jul;30(4):631-8. PMID 2670981
  3. Attwood, Tony. "Asperger's Syndrome: A Guide for Parents and Professionals". Jessica Kingsley, London, 1997. ISBN 1853025771, pp. 195-196.
  4. Martin, Neilson C. (Feb, 2006). "DCD and ADHD: A genetic study of their shared aetiology". Human Movement Science 25. 25 (1). The Association for Child Psychology and Psychiatry: 110–124. doi:10.1016/j.humov.2005.10.006. ISSN: 0167-9457. {{cite journal}}: Check date values in: |date= (help); Unknown parameter |coauthors= ignored (|author= suggested) (help)
  5. White, C. Swedish court rules against doctor at centre of row over destroyed research data. British Medical Journal 2005 Jul 23;331(7510):180. PMID 16037439

References

  • Happe, Francesca (Dec 20, 1996). "'Theory of mind' in the brain. Evidence from a PET scan study of Asperger syndrome". Neuroreport. 8 (1). Rapid Science Publishers: 197–201. ISSN:0959-4965. {{cite journal}}: Unknown parameter |coauthors= ignored (|author= suggested) (help)
  • Jamain, Stéphane (31 March, 2003). "Mutations of the X-linked genes encoding neuroligins NLGN3 and NLGN4 are associated with autism". Nature Genetics. 34 (1). Nature Publishing Group: 27–29. doi:10.1038/ng1136. ISSN: 1061-4036. {{cite journal}}: Check date values in: |date= (help); Unknown parameter |coauthors= ignored (|author= suggested) (help)
  • Ståhlberg, Ola (July 2004). "Bipolar disorder, schizophrenia, and other psychotic disorders in adults with childhood onset AD/HD and/or autism spectrum disorders". Journal of Neural Transmission. 111 (7). Springer Wien: 891–902. doi:10.1007/s00702-004-0115-1. ISSN: 0300-9564. {{cite journal}}: Unknown parameter |coauthors= ignored (|author= suggested) (help)
  • Steffenburg, Suzanne (May, 1989). "A Twin Study of Autism in Denmark, Finland, Iceland, Norway and Sweden". Journal of Child Psychology and Psychiatry and Allied Disciplines. 30 (3). The Association for Child Psychology and Psychiatry: 405–416. ISSN: 0021-9630. {{cite journal}}: Check date values in: |date= (help); Unknown parameter |coauthors= ignored (|author= suggested) (help)

Further reading

  • Coleman, Mary; Gillberg, Christopher (1985). The biology of the autistic syndromes. New York: Praeger. ISBN 0030008344.{{cite book}}: CS1 maint: multiple names: authors list (link)
  • Gillberg, Christopher (1981). Neuropsychiatric aspects of perceptual, motor and attentional deficits in seven-year-old Swedish children. Uppsala: Uppsala University. ISBN 9155412122.
  • Gillberg, Christopher (ed.) (1989). Diagnosis and treatment of autism. New York: Plenum Press. ISBN 0306434814. {{cite book}}: |author= has generic name (help)
  • Gillberg, Christopher (1995). Clinical Child Neuropsychiatry. Cambridge University Press. ISBN 0521543355.
  • Gillberg, Christopher; Peeters, Theo (1998). Autism : medical and educational aspects. London: Whurr. ISBN 0521543355.{{cite book}}: CS1 maint: multiple names: authors list (link)
  • Gillberg, Christopher (2002). A Guide to Asperger Syndrome. Cambridge University Press. ISBN 0521001838.
  • Gillberg, Christopher;Harrington, Richard; Steinhausen, Hans-Christoph (2006). A clinician's handbook of child and adolescent psychiatry. Cambridge: Cambridge University Press. ISBN 9780521819367.{{cite book}}: CS1 maint: multiple names: authors list (link)

External links

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